Why don’t doctors screen patients for smell loss?

But Richard Doty, the Smell and Taste Center director at the Perelman School of Medicine at The University of Pennsylvania, said catching smell loss when people don’t recognize it as a problem is a significant challenge. 

“A number of studies in literature show that about a quarter of the people who have a smell problem, don’t know they have it until they’re tested,” Doty said. “For example, over 90% of people that have early-stage Parkinson’s disease have demonstrated smell loss, but only around 20 [to] 25 percent are aware of it.”

In addition to preventing disease progression, Doty argues that testing people’s sense of smell could prevent safety hazards.

“A person who has lost smell needs to be aware of spoiled food, dangerous environments, fire,” he said. “And indeed, a number of people die in accidental gas poisonings because they can’t smell, so there are reasons to know to be able to be aware of how much function you have.”

Barriers to smell loss screening

Parma said three barriers prevent routine smell testing: “Money, time, and awareness.”

Regarding time, Parma said incorporating smell tests into a doctor’s appointment is a challenge. 

“When you talk to clinicians, primary care providers, even specialized clinicians, like here, nose and throat specialists, they don’t have the time to add extra tasks.”

Approved tests that measure the olfactory system can take up to 12 minutes to complete. But even if a doctor takes the time to administer the test, there is no real financial incentive to use it. In many cases, smell tests are not reimbursed by private health insurance or Medicare. 

Jeb Justice, co-director at the University of Florida Clinic for Smell and Taste Disorders, said his center just pays for the test.

“It’s not like a hundred bucks a test,” said Justice, an ear, nose, and throat doctor.  “I think the tests are like $40 a piece. But you know, it’s if you add up seeing hundreds of patients and hundreds of those tests over the course of the year. Then you know it adds up over time.”

The third hurdle to overcome, says Parma, is awareness. 

Smell tends to be a neglected sense that some people consider less important until it’s compromised or gone. COVID-19 brought awareness to smell loss during the pandemic and how little health professionals know about the olfactory system. But still, experts like Doty, who have been in the field for decades, are not getting their hopes up yet. 

“I think it’s going to be a long haul, frankly,” he said. “I think there’s a lot of enthusiasm, which is good, and enthusiasm drives interest, and the more that representatives of Congress or senators and others can be informed of the problems that are associated with these with disorders with smell and taste problems and that really needs to be reimbursement there needs to be interest.”

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